I shouldn’t still… but I do.

I should be used to this by now, but I’m not.

It should not break my heart anymore, but it does.

I shouldn’t still… but I do.

Last night was another example of what we deal with all the time but, is rarely seen by the outside world.

It has been a strange week of “off” behavior for E. If he were a girl, I would wonder if it were the time of the month. Mood swings, anger out of the blue, silliness, hyperactivity, intense food likes and dislikes. I’ve mentioned before that I, personally, have been dealing with hormone imbalance issues, and I’ve always thought that E was strangely in tune with me and my moods. Maybe that’s why it was such a rough week. A bad week for me means a bad one for him. It’s like the old saying: “If mama ain’t happy, ain’t nobody happy.” (Sidebar: I hate the word ain’t!) It’s true for us, but in a totally different meaning. If something is bothering me (or even, sometimes, Dad) then E reacts in a less-than-desirable way, and everyone in the household is upset by it.

Last night, C was having some “bathroom” issues. There aren’t a lot of polite ways to talk about the “bathroom” things that we deal with in this house but, I’ll try. A few months back, C had gotten so backed up, that he was in horrible pain and couldn’t even go #1. He asked to have an ambulance called and ended up having to be flown to the hospital to be taken care of there. Now, we are dealing with months, even years, possibly, of monitoring and assessing him to make sure that he’s regular and that things don’t hurt. Last night, he needed to “go” but couldn’t. The pain got bad enough that he couldn’t relax to go #1. The stress of the parents goes through the roof. Do we have to rush him to the hospital again? Can we fix it at home?

Our baby is in distress, and so are we. Dad rushes out to the pharmacy just as they are closing, and makes it in time to buy the products we’ve been instructed that will help the situation. I stay and sit on the floor while C is moaning on the toilet. When he’s ready for a break, we get him into a bath of warm water and Epsom salts. He calls this a “relaxing bath” because he won’t have to wash himself (which he hates). He lays in the bath for a while and, between that and patience, he was able to go. Victory! We are able to deal with the situation at home. No ER visit this night.

Meanwhile, I should mention that it’s dinner time and we are trying to feed the family. E starts vacillating between being out-of-control hyperactive and panicked over his brother’s distress. He is very empathetic in some ways. Of course, he has had his share of ‘bathroom’ issues as well. E had chronic constipation from infancy all the way to age 7. He knows well how difficult this issue can be. His stress at the issue at hand has caused him to get out of control and demand attention of his own from mom and dad. Attention but, not positive attention. This makes him angry and he starts slamming doors and yelling. He likes to screech these high pitched noises that hurt the ears. He also tends to pick one person to vent his anger on. Usually it’s me.

Trying to keep the peace, Dad and I take turns helping Caleb, eating our own dinner and trying to help E stay calm. The evening progresses, C starts feeling better, things get moving and he finally is tucked in bed with Dad reading to him. E decides to try to be defiant and refuses to get ready for bed. He starts fighting, yelling at me. He slams his door only to open it and start yelling that he hates me; I’m the worst (mother). Over and over. Meanwhile, I’m sitting as still as a statue, trying not to react. This is what he wants, what he craves. This is his driving force.

I know in my head that he does not hate me. It’s his out of control mind talking. He may not even realize what he is saying at this point. But it hurts. My chest is tight and I’m trying to hold in the tears. I calmly sit there, pretending to ignore his outburst. He throws things. Yells some more. Now he’s even more upset that I “don’t care” that he hates me. Any comment I make causes a reaction so I continue to sit and just say “okay” to everything that he shouts at me.

After a long, drawn out process, Dad is able to finally to get C to sleep, despite the noise. He goes into E’s room and informs him that he will come in and read him a story once E has calmed down. It takes a while, but we hold firm. E calms enough for Dad to go in and deal with him. They talk. E apologizes. He was out of control. He didn’t mean any of it. He listens to his story, goes to sleep and peace descends once again in our home.

I knew he didn’t mean it. I knew he would feel sorry for how he acted. I’ve seen this before. I shouldn’t let it get to me, break me, make me cry but, I do. I cry for the pain or confusion or whatever else my dear sweet child is dealing with. I cry for the “normal” child we didn’t have. I cry for myself, for stress release, to lament all the feelings inside. Then I go and comfort myself with a huge bowl of dessert. The night is over and the new day will be different.

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Categories ADHD, Autism, ODD, Parenting, Uncategorized

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